Datica Podcast

August 30, 2017

Aaron Neinstein, MD: Emerging Healthcare Data Challenges from Patient Centric Technologies

On openness to patient generated data: “A big thing is more incentives from the payors, so over the last two years, we've seen the introduction of the Medicare chronic care management codes which create the payment opportunity for use of patient-generated health data. What those codes do is allow you to bill on on a monthly ongoing basis for taking care of a patient who has two or more chronic diseases. You could theoretically have a nurse or someone else on your staff managing the patient remotely and be billing for that time.”

On empowering consumers to push for change in healthcare: “So absolutely, certainly in the diabetes space there has been over the past 5 to 6 years a huge groundswell of people pushing for change in the use of patient-generated health data and in consumer-driven technology.”

On other disease communities using diabetes for a model for technology and tech services: “One place in particular where we are seeing similarities to diabetes is with asthma. If you think about capturing the action and activity that a patient takes in the normal course of the day. That's what we are talking about here; these are chronic diseases, where coming in for an office visit three or four times a year allows a narrow snapshot of what's happening in somebody's life. The reason we care about patient-generated health data is in theory, because it gives us the opportunity to see what somebody is doing day-to-day, 24/7, 365 in the context of their life, and tweak their treatment regimen or change their behavior to improve the management of their chronic disease.”

On how EHRs fit into the future of patient-generated data: “I think one of the things that people don't think about is how many different categories of patient-generated health data there actually are. If you break it down, you are talking about 7 or 8 categories of things that comprise what we now called PGHD.”

On different initiatives that might help with sharing data: “I hate to say it because it's definitely the buzzword of the year, but I think one of the things that is floating out there that's a possible way to help this problem over the next 10 years is blockchain. I realize there's a lot of hype around it and we are still completely unsure of where this is going to end up, but in theory, blockchain allows a centralized ledger for data so that there's a single source of truth that could be controlled by the person, by the user, by the patient. So, I think there's a lot of theoretical potential.”

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